Personal Media Attention
Since becoming active in the CHD community in 2011, I've had the honor of being featured in a variety of media to raise awareness for the cause.
Through my volunteer work with the Chicago Adult Congenital Heart Network, I was invited to be filmed for an informational video featuring adult CHD patients and their stories. (Note: Now that I've had my second open heart surgery—and no longer have an aneurysm!—the information in the video is a bit out of date. But the summary I provide at the end is still very relevant.)
The National Center on Birth Defects and Developmental Disabilities (part of the Centers for Disease Control and Prevention) featured me in its online Flickr gallery: Birth Defects and Genetic Conditions.
Public Media Attention
We still have a long way to go to make CHD front and center in people's minds, but we are definitely making progress! What's listed below is not intended to be a comprehensive summary of all public media mentions of CHD. (I do not have the time or capacity to maintain such a list.) What I've included here are some of the highlights that I have come across.