This page provides an overview of both the personal media attention that I have received as a CHD survivor and a sampling of some of the public media attention recently given to CHD.

Personal Media Attention

Since becoming active in the CHD community in 2011, I've had the honor of being featured in a variety of media to raise awareness for the cause.

June 2013

Through my volunteer work with the Chicago Adult Congenital Heart Network, I was invited to be filmed for an informational video featuring adult CHD patients and their stories. (Note: Now that I've had my second open heart surgery—and no longer have an aneurysm!—the information in the video is a bit out of date. But the summary I provide at the end is still very relevant.)

January 2013

The National Center on Birth Defects and Developmental Disabilities (part of the Centers for Disease Control and Prevention) featured me in its online Flickr gallery: Birth Defects and Genetic Conditions.

Public Media Attention

We still have a long way to go to make CHD front and center in people's minds, but we are definitely making progress! What's listed below is not intended to be a comprehensive summary of all public media mentions of CHD. (I do not have the time or capacity to maintain such a list.) What I've included here are some of the highlights that I have come across.

February 2014